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SMA and Screening: The Views of Families - The Imagining Futures Research

Dr. Felicity Boardman’s Project Report

The next policy review for SMA screening is due to take place in 2016. The results of this major study will be fed into any national consultation on SMA screening in the UK.

Read the article in full here

Alternatively you can click through to sections of the article below:

Why the Project was set up

How the Project was structured

What the survey covered

Who responded to the survey

What were the Attitudes to Screening and SMA?

Strengths and Weaknesses of the Survey


The first paper from the Imagining Futures study has now been published in the American Journal of Medical Genetics. You can download this here.

If you have any feedback or comments relating to the Imagining Futures research project, please email Felicity Boardman (Warwick University) directly:

If this research has raised any issues or emotions for you and you would like to speak to a member of the Support Services Team at SMA Support UK then please phone us on: 01789 267 520 or email:

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