Personal Experiences of Living with SMA
Type 2 and 3
Our thanks to the children, families and adults living with SMA Type 2 and 3 who have shared their many different experiences. If you have any questions, or would like to add your story, please get in touch with firstname.lastname@example.org
Alex, who has SMA Type 2, shares his experiences and thoughts on gaining independence at The National Star College, thinking about the future, and his love of the performing arts.
Ross, who has SMA Type 2, describes his recent trip with a group of friends to the Calvert Trust in Exmoor.
Charlie contacted us wanting to become more involved with SMA Support UK and offering to volunteer his services. We suggested he might like to start by sharing some of his many and varied experiences.
Georgia, who has SMA Type 2, shares her story here about becoming a mum to Lio.
Martyn and his fiancé, Kasia, recently travelled to Devon to try an accessible horse and carriage ride at Calvert Trust, Exmoor. Find out how they got on.
Esther Fox, artist, and Felicity Boardman, researcher, ask all of us to consider the wide ranging implications that pre-natal genetic screening would have if it were more widely available.
In 2015/16, we awarded nine grants of £1000 to students engaged in Higher or Further Education. Here, some of them tell us how they're getting on.
Mia watched a video talk by Stella Young. It got her thinking and prompted the 14 year old to share her own thoughts and reflections with us.
Luke recently did a week’s work experience at a police station in Gloucester and spoke to SMA Support UK about how it went.
Joan decided to live independently when she was 42. Read her story from 2010 and see the video of how she's getting on in 2016.