Latest News: Support
18 January 2019 / Posted in: Information, Support
This international research will give a better understanding of how physical therapy services are provided to those with SMA and will help give further information about issues that may be relevant to improving the education around this. Closes 1st March.
07 January 2019 / Posted in: Information, Support
Trailblazers want to hear from young, disabled people about how they feel about their 'body image'. By this, they mean how individuals feel about the way they look and how this affects confidence, self-esteem and mental wellbeing.
29 November 2018 / Posted in: Information, Support
Newlife are calling on the government to help those children whose lives are at risk because they don’t have the specialist equipment they need. Their report, 'Equipment Crisis for Disabled Children', outlines a four-point-plan to improve equipment services for disabled children and their families.
28 November 2018 / Posted in: Information, Support
On Wednesday 21st November, we joined MDUK at Parliament for the launch of this inquiry, which included discussing ways to improve the availability of appropriate psychological support. You can read their full APPG report here.
26 November 2018 / Posted in: Information, Support
Able Move, a start-up company that has created a portable solution for disabled travellers, has been chosen as winner of this award, in partnership with Leonard Cheshire. The company was founded by Josh Wintersgill, a cyber-security manager from Bristol, who has SMA.
19 November 2018 / Posted in: Information, Support
A consultation being run by the Office of Rail and Road (ORR) sets out proposals to change the Disabled People's Protection Policy (DPPP) Guidance for train and station operators on how to write their policies for helping disabled people to travel by rail.
01 November 2018 / Posted in: Information, Support
The charity Turn2Us have written an article explaining how people claiming Universal Credit can get help through Universal Support which enables them to make a claim and manage ongoing payments.
24 October 2018 / Posted in: Support
If you have attended one of our Autumn/Winter Social Events so far we hope you had an enjoyable day. We would like your feedback and have put together a short survey to gather your views.
09 October 2018 / Posted in: Information, Treatments & Research, Support
We are now starting to work out priorities for the new organisation, including how and when the funds we hope to raise should be spent. We are very keen to hear the views of as many people in the SMA Community as possible. The survey closes on 11th November.
08 October 2018 / Posted in: Information, Support
The Change 100 scheme was launched in 2014 to enable young disabled people to obtain useful work experience and mentoring. Applications are now open until 16th January 2019.