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Latest News: Information & Support

Carers: Your Right To Request Flexible Working Hours

14 June 2018 / Posted in: Information & Support

Carers UK have information on their website and a free, downloadable guide on your right to request flexible working.

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Petition to End the Care Crisis

12 June 2018 / Posted in: Information & Support

After surveying nearly 4,000 adults of all ages who need care or who look after someone with care needs, the Care and Support Alliance (CSA) discovered that people are unable to get the basic care and support they need. Add your voice to their campaign and sign the petition.

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Campaign To Provide Cough Assist Machines

06 June 2018 / Posted in: Information & Support

Add your voice to this campaign calling on NHS commissioners in the West Midlands to provide life-saving cough assist machines to people with muscle-wasting conditions.

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Helpful Podcasts

31 May 2018 / Posted in: Information & Support

Contact have a number of helpful podcasts available to listen to on their website. Their latest is by one of their helpline advisers who explains what happens when a young person who is on Disability Living Allowance turns 16.

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Extending Rights to Personal Health Budgets

04 May 2018 / Posted in: Information & Support

This survey seeks views on extending specific groups rights to an integrated personal budget (e.g.people who access wheelchair services whose posture and mobility needs impact their wider health & social care needs) and on the potential to incorporate additional funding streams into that budget.

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Access to Psychological Support - Your Views

02 May 2018 / Posted in: Information & Support

Thank you to those of you who completed our surveys. We have forwarded the results and your comments to MDUK so that they can be incorporated into the report they are preparing for the APPG 6-month inquiry. To see the results of the surveys, or if you are seeking emotional support, please click here.

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Survey about Family Finances

24 April 2018 / Posted in: Information & Support

Contact is calling on family members who care for children and young people with additional needs or disabilities to take part in important research about family finances.

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Do you have SMA? Are you thinking about having children now or in the future?

12 April 2018 / Posted in: Information & Support

We have a number of resources available here on our website that you may find helpful or of interest, including personal stories that mums with SMA have shared.

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New Resource From Together For Short Lives

03 April 2018 / Posted in: Information & Support

‘A checklist to a good transition’ joins their list of resources aimed at improving the experiences of young people moving from familiar children’s services into adult services.

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Disability Rights UK Guide: Into Higher Education

29 March 2018 / Posted in: Information & Support

'Into Higher Education' is a guide for anyone with a health condition, learning difficulty or disability, thinking about studying in higher education starting September 2018.

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