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Latest News: Information & Support

Wanted - Your Feedback!

27 April 2017 / Posted in: Information & Support

​Calling all individuals, families and professionals. Please tell us what you think about current services and give your thoughts on our future direction in our survey. Closing date for responses is 5pm on Friday 26th May 2017.

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New SMA Voices: Ross

12 April 2017 / Posted in: Information & Support

Ross Lannon is 23 years old and has Spinal Muscular Atrophy Type 2. He has written an SMA Voices for our website that describes his recent trip to the Calvert Trust in Exmoor with a group of friends.

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SMARD Route Map Published

28 March 2017 / Posted in: Information & Support

This resource gives a summary of support services and resources available in the UK for families. It is based on the issues, concerns and personal experience of parents with contributions from health and social care professionals.

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Housing for Disabled People: Have Your Say

09 March 2017 / Posted in: Information & Support

The Equality and Human Rights Commision want to hear from disabled people to understand whether the availability of accessible and adaptable housing, and the support services around it, fulfils disabled people’s rights to live independently. Closing date is Tuesday 18 April 2017.

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Contestants Wanted For A Brand New BBC Show

08 March 2017 / Posted in: Information & Support

Hindsight Productions is looking for a diverse range of contributors from around the UK to take part in a brand new BBC show called 'Letterbox'. Closing date for applications is 31st March.

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Nuffield Council on Bioethics: NIPT Report

01 March 2017 / Posted in: Information & Support

The Nuffield Council on Bioethics today has launched its new report 'Non-invasive prenatal testing: ethical issues' which explores the ethical issues raised by non-invasive prenatal testing (NIPT).

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Maximising Your Income

13 February 2017 / Posted in: Information & Support

Having SMA, or having a child with SMA, can have financial implications so it is important to ensure you are receiving all the benefits and services you are entitled to. There are several organisations that may be able to help with this.

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Campaign To Improve School Transport

10 February 2017 / Posted in: Information & Support

Contact a Family have launched their biggest inquiry into school transport for disabled children, and they want to hear from you. Take part in their survey to share your experiences, both positive and negative.

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New SMA Voices: Hello From Charlie

10 February 2017 / Posted in: Information & Support

Charlie contacted us wanting to become more involved with SMA Support UK and offering to volunteer his services. We suggested he might like to start by sharing some of his many and varied experiences.

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The National Key Scheme - Opening Doors to Independent Living

09 February 2017 / Posted in: Information & Support

Be in control and buy a Radar Key from Disability Rights UK for priority access to over 9000 accessible toilets in the UK.

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