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Latest News: Information

Online Survey for Paediatric Physios re SMA

18 January 2019 / Posted in: Information, Support

This international research will give a better understanding of how physical therapy services are provided to those with SMA and will help give further information about issues that may be relevant to improving the education around this. Closes 1st March.

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Trailblazers Body Image Survey

07 January 2019 / Posted in: Information, Support

Trailblazers want to hear from young, disabled people about how they feel about their 'body image'. By this, they mean how individuals feel about the way they look and how this affects confidence, self-esteem and mental wellbeing.

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CQC Survey: People's Experiences of Care

04 January 2019 / Posted in: Information

The Care Quality Commission is running a survey to find out people's different experiences of care. By sharing your experiences, you’ll help them to improve the overall quality of care in England.

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Newlife #FixTheFour Campaign

29 November 2018 / Posted in: Information, Support

Newlife are calling on the government to help those children whose lives are at risk because they don’t have the specialist equipment they need. Their report, 'Equipment Crisis for Disabled Children', outlines a four-point-plan to improve equipment services for disabled children and their families.

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SMA UK attended APPG Psychological Support Inquiry Launch

28 November 2018 / Posted in: Information, Support

On Wednesday 21st November, we joined MDUK at Parliament for the launch of this inquiry, which included discussing ways to improve the availability of appropriate psychological support. You can read their full APPG report here.

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Able Move Chosen as Winner of Stelios Award for Disabled Entrepreneurs 2018

26 November 2018 / Posted in: Information, Support

Able Move, a start-up company that has created a portable solution for disabled travellers, has been chosen as winner of this award, in partnership with Leonard Cheshire. The company was founded by Josh Wintersgill, a cyber-security manager from Bristol, who has SMA.

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ORR Improving Assisted Travel Consultation

19 November 2018 / Posted in: Information, Support

A consultation being run by the Office of Rail and Road (ORR) sets out proposals to change the Disabled People's Protection Policy (DPPP) Guidance for train and station operators on how to write their policies for helping disabled people to travel by rail.

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Universal Credit and Universal Support

01 November 2018 / Posted in: Information, Support

The charity Turn2Us have written an article explaining how people claiming Universal Credit can get help through Universal Support which enables them to make a claim and manage ongoing payments.

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Survey About The Impact Of Physiotherapy

24 October 2018 / Posted in: Information

An A-Level student is running this survey to find out to what extent physiotherapy improves the quality of life for those with SMA compared to other care pathways.

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Campaign for the Government to put Children at the Heart of its Spending Plans

23 October 2018 / Posted in: Information

We support this campaign which shows there is compelling evidence that the services and support that children and young people rely on are at breaking point.

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