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Latest News: Information

ORR Improving Assisted Travel Consultation

19 November 2018 / Posted in: Information, Support

A consultation being run by the Office of Rail and Road (ORR) sets out proposals to change the Disabled People's Protection Policy (DPPP) Guidance for train and station operators on how to write their policies for helping disabled people to travel by rail.

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SMA UK to attend APPG Psychological Support Inquiry Launch

19 November 2018 / Posted in: Information, Support

On Wednesday 21st November, we are going to be joining MDUK at Parliament for the launch of this inquiry, which includes discussing ways to improve the availability of appropriate psychological support.

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Universal Credit and Universal Support

01 November 2018 / Posted in: Information, Support

The charity Turn2Us have written an article explaining how people claiming Universal Credit can get help through Universal Support which enables them to make a claim and manage ongoing payments.

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Survey About The Impact Of Physiotherapy

24 October 2018 / Posted in: Information

An A-Level student is running this survey to find out to what extent physiotherapy improves the quality of life for those with SMA compared to other care pathways.

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Campaign for the Government to put Children at the Heart of its Spending Plans

23 October 2018 / Posted in: Information

We support this campaign which shows there is compelling evidence that the services and support that children and young people rely on are at breaking point.

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Project Move

22 October 2018 / Posted in: Information

Project Move is an exciting joint venture between Alder Hey and The University of Liverpool looking at redesigning and modernising children’s powered wheelchairs. Find out how you could get involved by attending their event.

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Consultation About Spinal Muscular Atrophy UK's Priorities

09 October 2018 / Posted in: Information, Treatments & Research, Support

We are now starting to work out priorities for the new organisation, including how and when the funds we hope to raise should be spent. We are very keen to hear the views of as many people in the SMA Community as possible. The survey closes on 11th November.

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Leonard Cheshire's Change 100 Programme Now Open For Applications

08 October 2018 / Posted in: Information, Support

The Change 100 scheme was launched in 2014 to enable young disabled people to obtain useful work experience and mentoring. Applications are now open until 16th January 2019.

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Easier Assistance App for Disabled Rail Passengers

28 September 2018 / Posted in: Information, Support

A new smartphone app, currently being trialled by four train companies, will be rolled out across Britain in Autumn next year to help with passenger assistance, with the aim of making it easier for customers to book help at stations and get a more consistent and reliable service.

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Call for Evidence Launched into Social Care Funding in England

27 September 2018 / Posted in: Information

The Lords Economic Affairs Committee has launched its inquiry into the social care system in England and invites written contributions from anyone.

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